Iowa City-New Neurologist

We just got back from Jackson's Neurology appointment.  His new Neurologist is based out of Iowa City. When we first met her last March, we (Ryan, my parents, and myself) instantly had a connection with Dr. Joshi-we all loved her!  Anyway, she said that she was very impressed with Jackson and his development, that it "excites" her.  She does not need to see him until November or December (we are used to monthly visits with EEG's) for a checkup and MRI....YES!!!  We are trying vitamin B6 (along with Keppra) for his seizures and temperament, but other than that, we left the hospital with smiles:)  Happy days ahead!!!! 

NEGATIVE!!!

After waiting 6 weeks, we received great news today!  Jackson's lab results for Tuberous Sclerosis came back negative!!!  WE are ecstatic!  I am carrying a little less weight on my shoulders.....and it feels amazing!  For those of you that don't know, back in May Jackson's neurologist called me and said that we need to test him for Tuberous Sclerosis-genetic mutation where "tubers" tumors form in all the major organs-a very devastating diagnosis.  I am soooo happy that he does not have this; but after months of research, I am very sad for all the other children (and parents) that do.

For now, before I put him to sleep each night, I kiss Jackson's head where his tumors are located and tell them "to stay small and not to grow" and pray for another wonderful day tomorrow.

I can't wait to post when we have found a medicine that stops his seizures....hopefully soon!

Pebble

You may be wondering why I am posting a pic of this pebble.  Well, the other night Dylan got in trouble for pushing his brother (imagine that) and as I was talking to him, he blew his nose really hard and this pebble appeared at the opening of his nostril.  It was completely lodged in the opening.  I had to squeeze his nose to pop it out.  When it came out, he said to me "that feels good"!  Oh my, he definitely keeps me on my toes!!!!

Famous Quotes from Dylan

"Really mommy"
"STOP, let's think"
"Just give me a minute"
"I don't want you, well.....maybe"
"I need 2 big minutes"
"Why is brother crying"
"Let's go check it out"
"Whoa whoa whoa"
"I not poop my pants"
I think Dylan has been hanging out with his mother too much!

Summerfest

It was nice to get out and enjoy an evening with our friends...good times with great people!

Partners in crime

Ben looks so good with a purse

Grandpa and Grandma Broich

Monkey Joe's

Dylan's party was a success!  It was so good to have our friends and family there to celebrate.  We were exhausted by the end, even Dylan was tired-hard to believe!!

On our way, sooooo excited 

8 pics later, this is the best family pic we could get

The dinosaur pops out of the cake-Dylan was so scared

Blowing out the candles with his friends

"The Crew"

Wanting to blow out the candles too!

Gotta love the fake smile

Love this picture of Jackson and his cousin Natalie

WE SURVIVED!!!!

Swimming

Here are a few pics from the last couple of weeks.

Had to post this pic, look at those curls!

Grandma Neumann with her boys and her grandchildren