NEGATIVE!!!

After waiting 6 weeks, we received great news today!  Jackson's lab results for Tuberous Sclerosis came back negative!!!  WE are ecstatic!  I am carrying a little less weight on my shoulders.....and it feels amazing!  For those of you that don't know, back in May Jackson's neurologist called me and said that we need to test him for Tuberous Sclerosis-genetic mutation where "tubers" tumors form in all the major organs-a very devastating diagnosis.  I am soooo happy that he does not have this; but after months of research, I am very sad for all the other children (and parents) that do.

For now, before I put him to sleep each night, I kiss Jackson's head where his tumors are located and tell them "to stay small and not to grow" and pray for another wonderful day tomorrow.

I can't wait to post when we have found a medicine that stops his seizures....hopefully soon!