Unfortunately, his story does not have an ending. In March, we met with the best brain surgeon in the country. We found out that the spots on his brain (that we originally thought were from a stroke) are either slow growing tumors or cortical dysplesia (where the cells do not form correctly). He told us that he will not operate on Jackson's brain unless he absolutely had too because we run the risk of paralyzing the whole right side of his body. So, every 6 months Jackson will have a MRI to make sure the spots have not grown.
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| We were camera happy during this 24 hour EEG-Probably because he was not having Spasms! |
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| Just hanging out in his hospital bed |
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| It was a rough night, but we made it! |
In his short 15 months of life.....Jackson has had 14 EEG's, visited the hospital more than I can count, been poked and prodded numerous times, seen more speciality doctors than you can count on 2 hands (yep at least 10), experienced extreme weight gain (ha) from the prednisone, high dosages of medicine, had ear tubes put in, been dropped from a changing table (after a 6 month leave of absence from daycare), and glasses (not from the medicine, he is just extremely farsighted). He is currently having seizures-Partial Complex Seizures that last 10-20 seconds. So far the medicine has not stopped the seizures, but we are hopeful that we will find one that works!
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| June 2011 |
We are waiting for a couple of blood tests to come back -trying to rule out or find more pieces to the mysterious spots on his brain.
Believe it or not, I have left out so many details to his story. I will tell you one thing, Jackson won't let these things get in his way-he is one determined little boy.
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